Medical Futility in Pediatrics: Challenges, Hopes, and New Perspectives
- Authors: Ardeshir Khorsand1, Zahra Mohajer2, Soroush Khojasteh Kaffash3, Zahra Hosseini Bajestani4, Azar Ghasemi5, Farbod Ghobadinezhad6, Noosha Samieefar7
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View Affiliations Hide Affiliations1 Department of Oral and Maxillofacial Surgery, School of Dentistry, Shahid Beheshti University of Medical Sciences, Tehran, Iran 2 USERN Office, Shahid Beheshti University of Medical Sciences, Tehran, Iran 3 USERN Office, Shahid Beheshti University of Medical Sciences, Tehran, Iran 4 School of Medicine, Shahid Beheshti University of Medical Sciences, Tehran, Iran 5 USERN Office, Shahid Beheshti University of Medical Sciences, Tehran, Iran 6 USERN Office, Shahid Beheshti University of Medical Sciences, Tehran, Iran 7 USERN Office, Shahid Beheshti University of Medical Sciences, Tehran, Iran
- Source: Common Pediatric Diseases: Current Challenges , pp 231-268
- Publication Date: October 2023
- Language: English
The concept of medical futility is explored, particularly in relation to the challenge of defining futile treatments, and the difficulties in identifying patient subgroups that strictly match the criteria for treatment futility. The issue of categorizing perinatal disorders as fatal is an important topic, with a focus on the moral and legal repercussions of identifying lethal malformation. The identification of a lethal malformation often has moral and legal repercussions, and the phrase “lethal" should be avoided unless it is precisely defined, used consistently, and covered in transparency in perinatal counseling following prenatal diagnosis. We argue that a nuanced and carefully considered approach is required, one that takes into account the complex medical and ethical issues involved, and that focuses on the best interests of the patient and their family. Overall, we highlight the importance of ethical considerations and effective communication in the provision of perinatal palliative care for fetuses with genetic disorders and congenital defects. Also, while there is much that remains uncertain and controversial in this field, continued research and discussions are necessary to ensure that the best possible care is provided for all patients and their families.
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